BEYOND THE BLEED™ References
The Lewin Group. NHF Summit on Von Willebrand Disease. Falls Church, VA: The Lewin Group; 2014.
Monthly Population Estimates for the United States: April 1, 2010 to December 1, 2017. 2016 Population Estimates. United States Census Bureau website.
http://factfinder.census.gov/ Accessed April 17, 2017. bkmk/table/1.0/en/PEP/ 2016/PEPMONTHN. What is von Willebrand Disease (VWD)? Hemophilia Federation of America website.
http://www.hemophiliafed.org/. Accessed April 17, 2017. bleeding-disorders/vwd/ Haemophilia Foundation Australia. A guide for people living with von Willebrand disorder.
https://www.haemophilia.org.au/HFA/media/Documents/von%20Willebrand%20Disorder/A-guide-for-people-living-with-von-Willebrand-disorder.pdf. Accessed April 17, 2017. Canadian Hemophilia Society. All about von Willebrand disease…for people with von Willebrand disease and their families. 3rd ed.
http://www.hemophilia.ca/ Published December 2011. Accessed April 17, 2017. files/AllAboutVWDRevisedEng.pdf. Lesh M. Introduction to von Willebrand disease. In:
Nursing Working Group—Nurses' Guide to Bleeding Disorders. New York, NY: National Hemophilia Foundation; 2012. Centers for Disease Control and Prevention. Facts about von Willebrand disease.
http://www.cdc.gov/ Updated November 17, 2016. Accessed April 17, 2017. ncbddd/vwd/ facts.html. Terraube V, O'Donnell JS, Jenkins PV. Factor VIII and von Willebrand factor interaction: biological, clinical and therapeutic importance.
Haemophilia. 2010;16:3‐13. National Hemophilia Foundation. Von Willebrand disease.
https://www.hemophilia.org/ Accessed April 17, 2017. Bleeding-Disorders/ Types-of-Bleeding-Disorders/ Von-Willebrand-Disease. Nichols W, Hultin M, James A, et al. von Willebrand diease (VWD): evidence-based diagnosis and management guidelines, the National Heart, Lung, and Blood Institute (NHLBI) Expert Panel report (USA).
Haemophilia. 2008;14:171-232. Tosetto A, Rodeghiero F, Castaman G, et al. A quantitative analysis of bleeding symptoms in type 1 von Willebrand disease: results from a multicenter European study (MCMDM-1 VWD).
J Thromb Haemost. 2006;4:766-773. van Galen KP, Sanders YV, Vojinovic U, et al. Joint bleeds in von Willebrand disease patients have significant impact on quality of life and joint integrity: a cross-sectional study.
Haemophilia. 2015;21:e185-e192. National Heart, Lung, and Blood Institute. How is von Willebrand diagnosed?
http://www.nhlbi.nih.gov/ Updated June 1, 2011. Accessed April 17, 2017. health/health-topics/ topics/VWD/diagnosis#. National Heart, Lung, and Blood Institute. How is von Willebrand Disease treated?
http://www.nhlbi.nih.gov/ Updated June 1, 2011. Accessed April 17, 2017. health/health-topics/ topics/vwd/treatment#. de Wee EM, Mauser-Bruschoten EP, Van Der Bom JG, et al. Health-related quality of life among adult patients with moderate and severe von Willebrand disease.
J Thromb Haemost. 2010;8:1492-1499. Hemaware: Hemophilia Treatment Centers 101.
http://www.hemaware.org/. Accessed April 17, 2017. story/hemophilia-treatment-centers-101 Baker JR, Riske B, Drake JH, et al. US Hemophilia Treatment Center population trends 1990-2010: patient diagnoses, demographics, health services utilization.
Haemophilia. 2013;19:21-26. National Institutes of Health, National Heart Lung and Blood Institute. In brief: your guide to von Willebrand disease.
http://www.nhlbi.nih.gov/. Accessed April 17, 2017. health/resources/blood/vwd-in-brief-html