For Healthcare Providers
BeyondtheBleed.com is a great von Willebrand disease (VWD)‑dedicated resource for your patients to find information about the mechanics of VWD, how its diagnosis will affect them and find helpful resources available to them. It
contains information around:
Did you know?
VWD is thought to be the most common bleeding disorder.
It's estimated to occur in up to 1% of the U.S. population but is difficult to diagnose.3,13
Feelings of isolation and marginalization in addition to physical symptoms are common for an individual with a VWD diagnosis. This is due largely to the fact that there is a lack of awareness around the disease, so it’s underdiagnosed. A person with VWD may have spent years treating symptoms for a “mystery illness.”
The site also provides an overview of how patients might be reacting physically and emotionally to a diagnosis, plus resources available to them for support. You can help expand the VWD community by sharing these links, downloads and social platforms and encouraging people with a VWD diagnosis to engage with them frequently.Read more about it