REFERENCES

  1. The Lewin Group. NHF Summit on Von Willebrand Disease. Falls Church, VA: The Lewin Group; 2014.
  2. Monthly Population Estimates for the United States: April 1, 2010 to December 1, 2016. 2015 Population Estimates. United States Census Bureau website. http://factfinder.census.gov/ bkmk/table/1.0/en/PEP/ 2015/PEPMONTHN. Accessed June 24, 2016.
  3. What is von Willebrand Disease (vWD)? Hemophilia Federation of America website. http://www.hemophiliafed.org/ bleeding-disorders/vwd/. Accessed May 26, 2016.
  4. Haemophilia Foundation Australia. A guide for people living with von Willebrand disorder. https://www.haemophilia.org.au/ documents/item/1301. Accessed January 22, 2016.
  5. Canadian Hemophilia Society. All about von Willebrand disease…for people with von Willebrand disease and their families. 3rd ed. http://www.hemophilia.ca/ files/AllAboutVWDRevisedEng.pdf. Published December 2011. Accessed January 22, 2016.
  6. Lesh M. Introduction to von Willebrand disease. In: Nursing Working Group—Nurses' Guide to Bleeding Disorders. New York, NY: National Hemophilia Foundation; 2012.
  7. Centers for Disease Control and Prevention. Facts about von Willebrand disease.
    http://www.cdc.gov/ ncbddd/vwd/ facts.html. Updated March 2, 2016. Accessed June 3, 2016.
  8. Terraube V, O'Donnell JS, Jenkins PV. Factor VIII and von Willebrand factor interaction: biological, clinical and therapeutic importance. Haemophilia. 2010;16:3‐13.
  9. National Hemophilia Foundation. Von Willebrand disease. https://www.hemophilia.org/ Bleeding-Disorders/ Types-of-Bleeding-Disorders/ Von-Willebrand-Disease. Accessed January 28, 2016.
  10. Nichols W, Hultin M, James A, et al. von Willebrand diease (VWD): evidence-based diagnosis and management guidelines, the National Heart, Lung, and Blood Institute (NHLBI) Expert Panel report (USA). Haemophilia. 2008;14:171-232.
  11. Tosetto A, Rodeghiero F, Castaman G, et al. A quantitative analysis of bleeding symptoms in type 1 von Willebrand disease: results from a multicenter European study (MCMDM-1 VWD). J Thromb Haemost. 2006;4:766-773.
  12. van Galen KP, Sanders YV, Vojinovic U, et al. Joint bleeds in von Willebrand disease patients have significant impact on quality of life and joint integrity: a cross-sectional study. Haemophilia. 2015;21:e185-e192.
  13. National Heart, Lung, and Blood Institute. How is von Willebrand diagnosed?
    http://www.nhlbi.nih.gov/ health/health-topics/ topics/VWD/diagnosis. Updated June 1, 2011. Accessed January 25, 2016.
  14. National Heart, Lung, and Blood Institute. How is von Willebrand Disease treated?
    http://www.nhlbi.nih.gov/ health/health-topics/ topics/vwd/treatment. Updated June 1, 2011. Accessed January 25, 2016.
  15. de Wee EM, Mauser-Bruschoten EP, Van Der Bom JG, et al. Health-related quality of life among adult patients with moderate and severe von Willebrand disease. J Thromb Haemost. 2010;8:1492-1499.
  16. Baker JR, Riske B, Drake JH, et al. US Hemophilia Treatment Center population trends 1990-2010: patient diagnoses, demographics, health services utilization. Haemophilia. 2013;19:21-26.
  17. Hemaware: Hemophilia Treatment Centers 101. http://www.hemaware.org/
    story/hemophilia-treatment-centers-101
    . Accessed May 27, 2016.
  18. National Institutes of Health, National Heart Lung and Blood Institute. In brief: your guide to von Willebrand disease. http://www.nhlbi.nih.gov/ health/resources/blood/vwd-in-brief-html. Accessed May 27, 2016.