For Healthcare Providers

Beyond the Bleed in brief

BeyondtheBleed.com is a great von Willebrand disease (VWD)‑dedicated resource for your patients to find credible information about the mechanics of VWD, how its diagnosis will affect them and find helpful resources available to them. It
contains information around:

  • Hemostasis and von Willebrand factor (VWF)
  • Symptoms of VWD
  • Types of VWD
  • Genetic Inheritance
  • Diagnosis & Treatment
  • Physical & Psychosocial Impacts
  • Tips for Living Well with VWD
  • Comprehensive Care
  • Physician Insights on VWD
  • Hemophilia Treatment Center Finder
  • Patient Testimonials
  • Resources and Support
Learn about VWD resources for healthcare providers
Learn about VWD resources for healthcare providers

Did you know?

VWD is thought to be the most common bleeding disorder.
It's estimated to occur in up to 1% of the U.S. population but is difficult to diagnose.3,13

Learn how a person with VWD might be feeling
Learn how a person with VWD might be feeling

How a person with VWD might be feeling

Feelings of isolation and marginalization in addition to physical symptoms are common for an individual with a VWD diagnosis. This is due largely to the fact that there is a lack of awareness around the disease, so it’s underdiagnosed. A person with VWD may have spent years treating symptoms for a “mystery illness.”

The site also provides an overview of how patients might be reacting physically and emotionally to a diagnosis, plus resources available to them for support. You can help expand the VWD community by sharing these links, downloads and social platforms and encouraging people with a VWD diagnosis to engage with them frequently.

Read more about it
Learn VWD topics to discuss with a patient
Learn VWD topics to discuss with a patient

Starting a conversation

To dive deeper into these insights, choose a topic and share these HCP discussion guides to help start a dialogue.

Where can I learn about actual patients?

Meet Jacey and Michelle, real patients who want you to know their stories

See stories

How do doctors treat VWD?

Meet some real bleeding disorder doctors and hear what they have to say about their experience treating people with VWD

Watch videos