It’s a common disease.
But not so commonly known.

Who gets von Willebrand disease?

Von Willebrand disease (VWD) is the most common bleeding disorder, occurring in approximately 1% of the world’s population, including as many as 3 million people in the US alone. It’s a hereditary disease and occurs in women and men in equal numbers.1-3

BeyondtheBleed.com explores questions you may have about VWD, how it’s diagnosed and treated and things you should know about living well. You can also engage with the site to download helpful tools, take some informative polls and find all sorts of links to help you engage with others in the VWD community. 

Learn more about VWD basics and who it affects Learn more about VWD basics and who it affects

What questions should I ask my HCP about VWD?

Answer a few questions about your experiences with VWD.
Based on your answers, Beyond the Bleed will generate talking points for sharing with your healthcare provider (HCP).

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What is it?

Find out what VWD is and how it affects your body. Learn about the different variations of the disease and where it comes from.

Learn more
Read more about VWD basics
Read more about VWD basics

If I have VWD, what will my symptoms be?

Learn about the symptoms of VWD and how your HCP might diagnose you. See the different treatment options available to people with VWD.

Find out now
Learn about symptoms of VWD
Learn about symptoms of VWD

What will happen to my body?

With any disease, physical symptoms can be acute, but what about the emotional impact of a VWD diagnosis? Learn about ways to help you live well while living with VWD.

Get the scoop
Learn about impacts of VWD
Learn about impacts of VWD

What are my options for managing VWD?

Comprehensive care teams at hemophilia treatment centers (HTCs) treat all types of bleeding disorders, including VWD. Their coordinated services provide outstanding treatment for all aspects of the patient journey.

What is it?
Watch to learn about physician insights
Watch to learn about physician insights

How do real people live with VWD?

Real people living with VWD share their stories and provide insights as only a fellow VWD veteran can.

Meet them
Learn about real people living with VWD
Learn about real people living with VWD

Can you keep me in the loop?

Updates from Shire—right in your inbox

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I’m an HCP. What’s here for me?

Resources for HCPs treating people living with von Willebrand disease

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